Withdrawal of mechanical ventilation in amyotrophic lateral sclerosis patients: a multicenter Italian survey

Cristina Moglia; Francesca Palumbo; Simone Veronese; Stefania Angelocola; Paolo Barone; Ilaria Bartolomei; Enrica Bersano; Alessandro Bombaci; Giuseppe Borghero; Sara Cabras; Chiara Cambieri; Elena Canali; Antonio Canosa; Margherita Capasso; Claudia Caponnetto; Patrizio Cardinali; Mario Casmiro; Marco Ceccanti; Adriano Chiò; Monica Consonni; Eleonora Dalla Bella; Fabiola De Marchi; Filippo De Mattei; Eustachio D’Errico; Francesca Di Pede; Luca Diamanti; Raffaele Dubbioso; Massimo Filippi; Massimiliano Filosto; Nicola Fini; Giulia Gianferrari; Maurizio Grassano; Maurizio Inghilleri; Vincenzo La Bella; Giuseppe Lauria; Laura Libonati; Francesco Logullo; Jessica Mandrioli; Umberto Manera; Ilaria Martinelli; Gioacchino Martusciello; Sabrina Matà; Enrico Matteoni; Letizia Mazzini; Doriana Medici; Stefania Miniello; Federica Moret; Cecilia Nozzoli; Giovanni Piccirillo; Giovanna Pilurzi; Nilo Riva; Silvia Romito; Massimo Russo; Fabrizio Salvi; Elisabetta Sette; Vincenzo Silani; Isabella Laura Simone; Cecilia Simonini; Rossella Spataro; Giovanna Squintani; Salvatore Stano; Raffaella Tanel; Gioacchino Tedeschi; Nicola Ticozzi; Antonella Toriello; Lucio Tremolizzo; Francesca Trojsi; Veria Vacchiano; Rosario Vasta; Paolo Volanti; Lucia Zinno; Elisabetta Zucchi; Andrea Calvo

doi:10.1007/s10072-023-06905-7

Abstract

1 min read

Law 219/2017 has had a positive impact on the practice of MV withdrawal in ALS patients in Italy. The recent growing public attention on end-of-life care choices, along with the cultural and social changes in Italy, requires further regulatory frameworks that strengthen tools for self-determination, increased investment of resources in community and PC health services, and practical recommendations and guidelines for health workers involved.

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